Sudden Unexpected Death in Epilepsy is a sudden and unexpected death caused by epilepsy. This is one of the most common neurological disorders in the world, with approximately 50 million people living with it.

About 1% of epilepsy sufferers die each year from SUDEP. This is why this event was created. SUDEP Action day was born.

Awareness alone is not enough. Not when three people die each day from epilepsy-related causes of death in the UK. It is an international day supported by organisations all over the globe, which makes it a global event and not a national one.

Epilepsy can affect anyone, no matter where they are located. It is imperative that we take action as too many people suffering from epilepsy are going to their graves without any other causes.

Effective treatments are needed, more research is required, and it will only be possible if enough people demand it.

In 2017, SUDEP Awareness Day was renamed SUDEP Action Day. The day’s purpose was to educate people about the topic and let them know why it was important. People are now being asked to take action instead of just being aware. People are being asked to share their stories, ask tough questions and make noise to raise awareness and help others.

Social media is a great place to share information, send out leaflets and write to local governments. This is how you celebrate. It is important to help people understand the problem and to identify what can be done to address it.

This event is about making noise to make sure that people in power listen. SUDEP raises many questions, and it is only through the collective efforts of the public that the answers can be found. The first step in education is at home. Once someone has information about SUDEP, they can share it with everyone else.

SUDEP is a serious problem that requires action. Participate in the SUDEP Action Day to help make the necessary changes to ensure epilepsy safety.